Georgia sat with curly hair and her sun glasses on, on the grass. She has crossed legs and in wearing a light blue top.
Cerebral Palsy

Managing a Post University and Lockdown Flop with Cerebral Palsy

I finished university over a month ago now and of course, I’d prepared myself for a flop as mentioned in the last post I wrote whilst I was still studying. But I didn’t quite think it would last this long.

After working from home since February 2020 (I started my virtual role-emerging placement before lockdown) when last month came I was more than ready to close my laptop and gain a bit of normality back. I am very fortunate that I have- going out with the girls again is so special. Yet, the reality of living with a chronic disability is that at times your disability does get the better of you and right now this flop is getting the better of me.

Before lockdown I had a lot of control over my disability, of course, I had lows and unexpected fatigue days but I managed this pretty well. But working from home for so long has really affected me in terms of fatigue and I find myself tiring a lot more easily and this is down to two reasons.

The first reason is the change in routine as mentioned. When I was studying I was quite strict with the amount of work I did during the day and I would start and finish at the same time. Therefore, although I’ve only been doing a few bits with the blog and writing guest posts (which I’ve missed doing- so it’s good to be back) it’s still a different routine and isn’t as full-on. Yet because I only have a few bits of blogs to do and it’s not as full-on as writing assignments I’m trying to stagger it out but this is affecting motivation levels. Then on the days where I do have more productive activities to do I find myself fatiguing really easily.

Moving on to leisure activities… Flopping or not I still try to keep busy and as mentioned it’s good to get out of the house! In fact the weekend I finished university I was barely in the house and it felt good to actually feel like a 21-year-old. But oh my word these activities are using up a hell of lot more spoons than they did 18-months ago. It’s taking me a while to find that correct balance with managing my fatigue again on days out and therefore a lot longer to recover.

Within these 4-weeks off I’ve noticed this impact and I find myself hitting the snooze button on my alarm a lot more.

Not only am I fatiguing because of the days out themselves I’m also fatiguing as I’ve forgotten how mentally exhausting it is planning a day out when you have a disability- that’s one thing I’ve not missed. Being outdoors with people is great I love socialising but again I’ve forgotten how much social anxiety I get being around people who don’t know me very well, due to the constant worry of not trying to spill a drink over, or trying not to fall. I know, I know I shouldn’t worry and let my internalised ableism take over, but it’s easier said than done after so long out of the game. It will never put me off going out and living my life but I’ve certainly forgotten how much energy that takes up.

I had to think a bit about if I wanted to do this post because I’ve done a lot of similar posts to this recently and I don’t want to sound like a broken record. I really want my GV mojo back but at the moment when I do go out, I’m using that many spoons it’s taking me longer than normal to recover.

I know that if I just take it easy I will (hopefully) be fine and ready to start enjoying the summer therefore for now taking it easy and carefully managing my disability is my main priority.

How do you manage a good old fashioned flop? Let me know in the comments.

Thank you for reading, 

Georgia x 
@georgiavine4213
@GeorgiaVineOT

Processing…
Success! You're on the list.

Latest from the Blog

A close up image of Georgia- hair straight just below shoulders I have my glasses on and a white top.

Using Online Communities to Collectively Analyse Disability Language in Practice

A few months ago I wrote a piece about Analysing Occupational Therapy Practice With a ‘Disabled Persons’ Eye which was quite a raw reflective piece but this only scratched the surface. Therefore, I wanted to make a series out of this about challenging practice. It was also originally Margaret’s idea to do a part 2… Continue reading Using Online Communities to Collectively Analyse Disability Language in Practice

Myself outside with curly hair and my glasses on holding up a light blue letter board saying 'Disability Pride Month 2021.

Will My Activism Look Different as a Qualified Occupational Therapist?- Disability Pride Month 2021

Happy Disability Pride Month 2020!! Now, I know this is the first time mentioning Disability Pride Month on the blog but, I have been very busy this month (and the last few weeks of last month preparing) so I have lots to tell you! Guess what’s back for Disability Pride Month…? ‘Dear OT Community’ is… Continue reading Will My Activism Look Different as a Qualified Occupational Therapist?- Disability Pride Month 2021

Myself sat looking to my left on the garden there's plants. I am sat on a grey Ratan chair in a mint pinafore with a white t-shirt.

How Studying Occupational Therapy Has Changed the Way I Manage My Disability

I got into disabled activism around 17 and in a way, I’ve always known that my disability would never be something that I ignored. Since starting (guest) blogging in 2017 my strategies of managing my disability has changed with age but many of the changes that I have made has been a result of my… Continue reading How Studying Occupational Therapy Has Changed the Way I Manage My Disability

Leave a Reply